Your Medical Records Exposed… Confirmed!

Great thoughts from David Dahm on the opt out issues related to the My Health Record. The ethics on the consent processneed to be examined very closely imho. Not withstanding the secondary use of your private health data does not have a framework around it as yet. Consent seems therefore flawed.

David Dahm

As I predicted in February 2016, your personal health record is being exposed, with or without your full knowledge. The Federal Government’s new $2bn national patient electronic health record system rollout is at full throttle.

exposed

This potentially means others have electronic access to your mental health, drug and alcohol abuse, sexually transmitted disease, domestic violence, and other sensitive information.

Do I opt out?

We have a saying’ ‘if in doubt opt out’. Indeed, you may wish to do this, but only after you have thoroughly researched how this may affect you or a loved one.

If you have any doubts, you need to opt out now before the three month deadline or an automated record will be created for you.

If you do opt out your records will not be deleted if you have opted in by default or with your permission – see Opt-out e-health records won’t be deleted

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8 thoughts on “Your Medical Records Exposed… Confirmed!

  1. Hmm, David is a tad alarmist. A responsible clinician would be having a careful discussion about what useful information can be uploaded to assist in clinical care. This is not about your whole record that your GP has being available on line

    • Of course the flip side is that the patient should be aware of what information is being stored by a doctor, and whom that doctor is releasing that too. Many organizations ask for data held by GPs completely outside the MyHealthRecord eHealth system. These include the Sentinel Flu Surveillance program, the National Prescriber Service, various private pharmacy agencies, Governments state and federal and your local Primary Health Network to name a few. A paranoid focus on one aspect of the broader use of patient information fails to acknowledge the responsibility of your Care providers to exercise good clinical governance.

      • True. And good governance need not be viewed as paranoia. Information Age though means many are unprepared through the technology being ahead of the ethical frameworks. The educative needs of that technological use is a part of good governance. As it has ever been.
        I suspect we are somewhat in agreement with different levels of caution and trust regarding the implementation. Moreso different thoughts perhaps on a collective understanding by the community at large of the increasing interesting issues surrounding health data ownership and use.

        But it is not clinicians alone who should be having this dialogue. It does not yet appear to be in the public domain.

  2. Thanks Ewen. Also thoughtful. I know you are in favour of the potential benefits of interoperability and rightly so. My concerns are around the process of consent. I am not aware of the framework for the secondary use of data. The applications for interested parties to contribute to that discussion closed in the Senate mid November. I don’t believe that secondary framework of use is yet developed within the legislation.

    I’m very sure I am not seer enough to see the future and the nexus between a central large repository of data and patient privacy needs careful explication with patients. Do you think this is happening? It is a dialogue that is not in the public domain much. People seem largely unaware of an opt out consent
    process. As an individual clinician I agree it is important to be very careful with patients and provide an educative process that leads to consent. I would like to see this being performed as an ethical informed
    process by the Government of the day with all the risks and benefits explained. It needs to be in the public domain.

    The issue is not the technology but the process and the educative one around the collection of data. How might this change the nature of our consultations and what patients ask us to upload? Much yet to ponder.

    • The Secondary Use of data report hasn’t been tabled yet and feedback just closed as you said. I agree that the person most responsible is your care provider and that people need to be aware of now many noses are already in the trough.

  3. I am not sure if clinicians have been given the time and resources to have a clear discussion with patients. My objection is to the lack of national media publicity on this issue for patients to decide. What ‘meaningful information’ is being uploaded? There is no commonly agreed health information conceptual framework or science on how this data is being collected and uploaded. Please send me a link if one exists. I do not mean to sound naive. I do not like people’s personal data being uploaded to anything without consent. Is it unreasonable when we question how this is being done?

  4. I am not sure if clinicians have been given the time and resources to have a clear discussion with patients. My objection is to the lack of national media publicity on this issue for patients to decide. What ‘meaningful information’ is being uploaded? There is no commonly agreed health information conceptual framework or science on how this data is being collected and uploaded. Please send me a link if one exists. I do not mean to sound naive. I do not like people’s personal data being uploaded to anything without consent. Is it unreasonable when we question how this is being done? What do the medical indemnity insurers say?

  5. I am not sure if clinicians have been given the time and resources to have a clear discussion with patients. My objection is to the lack of national media publicity on this issue for patients to decide. What ‘meaningful information’ is being uploaded? There is no commonly agreed health information conceptual framework or science on how this data is being collected and uploaded. Please send me a link if one exists. I do not mean to sound naive. I do not like people’s personal data being uploaded to anything without consent. Is it unreasonable when we question how this is being done? What do the medical indemnity insurers say? Is it not more important to get this right in the first place? Surely enough time and money have been spent by now?

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